The SMA Treatment Acceleration Act

To anyone who may read this.
Please take 10 mins to read this and send an email. If you need any help finding who to send it to let me know I will do that work for you!!!
This is a cause very near and dear to my heart has my little bro has a form of SMA and I would really appreciate any help what so ever that anyone can give. It will take 10 mins but could make all the difference in the world.
Below is all the information needed as well as the website to go to for more info. I am putting here the template for the letter to send to your representatives.
http://www.curesma.org/la_sample_letter_Aug2007.shtml

Please take the time to do this it is for a great cause.

The SMA Community is very pleased to announce that legislation to enhance federal support for Spinal Muscular Atrophy (SMA) research, H.R. 3334, "The SMA Treatment Acceleration Act", has been introduced in the U.S. House of Representatives by Congressman Patrick Kennedy (D-RI) and Congressman Eric Cantor (R-VA). U.S. Senator Debbie Stabenow (D-MI) and Senator Johnny Isakson (R-GA) plan to introduce companion legislation in the Senate when Congress returns from its August district work period. On behalf of our organizations and the families affected by this deadly disease, we want to express our gratitude and thanks to Congressmen Kennedy and Cantor and Senators Stabenow and Isakson for their leadership.

Today, the community is issuing a "Nationwide Call to Action" for all SMA families, researchers and friends to help engage every Member of Congress in support of this bill and so we are asking for your help in writing a letter to your Member of Congress and Senators asking them to sign on as a Cosponsor to "The SMA Treatment Acceleration Act".

On the FSMA web site (www.curesma.org) is a model letter you can use to send to your Member of Congress and Senators. Please feel free to personalize it or change it as you feel comfortable.



This will take just a few minutes of your time but it will make a great difference!



Here are a few simple steps:



~Write your letter based on the draft letter. If you are unsure of who your Member of Congress and Senators are please feel free to contact us and we will help you figure that out or click here for a link to the FSMA web site where you can locate your representatives.
~We encourage you to make your letter as personal as possible, feel free to add your personal story or send pictures along with your letter.
~Once you have completed your letter, if you have email, please email your letter to your Member of Congress and Senators.
~ Or if you prefer, fax your signed letters to your Member of Congress and Senators. Your Member of Congress and Senators e-mail and fax number can be found on the House of Representatives website www.house.gov or Senate website www.senate.gov or in the legislative section of the FSMA web site.
~ If you send by mail, please note that mail in the U.S. Capitol is still being screened for anthrax so it often takes weeks to get there! So if you can, please email or fax!!!!!!!!!!!!!!!!!!! ( If you are reading this you have email please email it!)
~Lastly, let us know when you have sent the letter via email or fax! You can do so by simply adding a cc: to your email or sending copies of your letters to Spencer, Laura or Caroline.
~As Members of Congress and Senators sign on to be Cosponsors of "The SMA Treatment Acceleration Act", we will send you updates! When you see your Members of Congress and Senators names, you will know that these few minutes have been worth your time! Laura Breiteneicher
SMA Foundation
laurab@wswdc.com Spencer Perlman
Families of SMA
spencer@fsma.org Caroline Gibson
FightSMA
carolinegibson@fightsma.com
~And if you don't see their names, we will ask that you contact them again to remind them of your request!
Remember, you are their constituent and their job is to help address the issues you care most about.

~Thanks in advance~